The Connective Tissue Project is a patient-advocacy nonprofit dedicated to supporting individuals with connective tissue disorders and the life-altering conditions that often accompany them — including cranio-cervical instability, dysautonomia, mast-cell disorders, neurological complications, and rare immune dysfunction.

Our mission is to make sure no patient has to fight alone, be dismissed, or go without access to the specialists, diagnostics, or care they need to survive and thrive.

We provide:

• Patient education & resources

• Advocacy and care-navigation support

• Connections to vetted specialists

• Assistance for travel to medical centers

• Financial support for uncovered diagnostics & treatment

• Awareness, storytelling, and research partnerships

• A community where rare-disease patients are believed

We are here to turn lived struggle into systemic change — and to give voice, dignity, and support to those too often overlooked in medicine.

Because every patient deserves to be seen, heard, and treated with respect.